Some sort of update...
Jan. 3rd, 2009 12:37 amHi. Um, it's actually me this time. Many thanks to my mom for updating - she's done a good job of reporting what we knew.
So the basic points are that yesterday morning, Jaime woke up with a horrible headache and got sick shortly afterwards. Things got worse, his left hand went numb, the left side of his face went numb, he started slurring his speech and responding very slowly to questions. We called 911 after the numbness started and once it was clear he couldn't walk to make it to the car. He started becoming more coherent by the time the ambulance showed up, and was pretty good when we arrived at the hospital. They gave him a painkiller for his head there, and he had a seizure. After that, everything's gone fairly well. He still has headaches and double vision, but he hasn't seized or gone stroke-like again, thank goodness.
Dr. Prissypants Fuckhead (the oncologist from Jaime's center who was on call and who I am pissed at right now) was convinced it couldn't possibly be a clot (even though Jaime has a history of clotting quickly, damnit! Just consider it!) that caused the initial symptoms and that instead it might be that the lymphoma has spread into his brain. Dr. Lunin, Jaime's normal oncologist, being a logical and decidedly awesome dude, disagrees. Given that Jaime's been getting strong prophylactic chemo intrathecally, that his CT scan in the ER came back clear, and that the numbness went away on its own, he doubts this is due to the lymphoma. He does still think Jaime should get a spinal tap to check the fluid for not just malignancy, but also for infections and the like. It could be that. It could also be that the Depocyt irritated everything and could have triggered the numbness as a pre-seizure sensation and the seizure itself. Jaime and I both think the Depocyt explanation is the most likely, but we're not oncologists, so I guess we'll just have to wait and see what the tests show. He was transferred to Moffitt, and we're getting settled in just now.
Now that we're here, I'll probably be online a lot. This may seem counter-intuitive, but think about it this way - when Jaime's on his pain pills, he spends most of his time sleeping. I can't just sit here and watch him breath like I'm prone to do. It doesn't help him, and it's not good for me. So, instead I'll do my best to stay distracted. Fandom's good for that.
I am so goddamn tired. I just about nodded off in the medical transport on the way here. Chances are I'll get a second wind and end up being up all night though, so. If anyone wants to chat about fluffy stuff or whatever, I'm game. I could use some light happy.
So the basic points are that yesterday morning, Jaime woke up with a horrible headache and got sick shortly afterwards. Things got worse, his left hand went numb, the left side of his face went numb, he started slurring his speech and responding very slowly to questions. We called 911 after the numbness started and once it was clear he couldn't walk to make it to the car. He started becoming more coherent by the time the ambulance showed up, and was pretty good when we arrived at the hospital. They gave him a painkiller for his head there, and he had a seizure. After that, everything's gone fairly well. He still has headaches and double vision, but he hasn't seized or gone stroke-like again, thank goodness.
Dr. Prissypants Fuckhead (the oncologist from Jaime's center who was on call and who I am pissed at right now) was convinced it couldn't possibly be a clot (even though Jaime has a history of clotting quickly, damnit! Just consider it!) that caused the initial symptoms and that instead it might be that the lymphoma has spread into his brain. Dr. Lunin, Jaime's normal oncologist, being a logical and decidedly awesome dude, disagrees. Given that Jaime's been getting strong prophylactic chemo intrathecally, that his CT scan in the ER came back clear, and that the numbness went away on its own, he doubts this is due to the lymphoma. He does still think Jaime should get a spinal tap to check the fluid for not just malignancy, but also for infections and the like. It could be that. It could also be that the Depocyt irritated everything and could have triggered the numbness as a pre-seizure sensation and the seizure itself. Jaime and I both think the Depocyt explanation is the most likely, but we're not oncologists, so I guess we'll just have to wait and see what the tests show. He was transferred to Moffitt, and we're getting settled in just now.
Now that we're here, I'll probably be online a lot. This may seem counter-intuitive, but think about it this way - when Jaime's on his pain pills, he spends most of his time sleeping. I can't just sit here and watch him breath like I'm prone to do. It doesn't help him, and it's not good for me. So, instead I'll do my best to stay distracted. Fandom's good for that.
I am so goddamn tired. I just about nodded off in the medical transport on the way here. Chances are I'll get a second wind and end up being up all night though, so. If anyone wants to chat about fluffy stuff or whatever, I'm game. I could use some light happy.